Tuesday, September 28, 2010
The Holy Ghost
Wednesday, September 22, 2010
Nine Days? REALLY???
Monday, September 13, 2010
Jacob And His Tighty Whities
Under the circumstances, I'm going to say I've done a SUPER job in raising him.
On June 11, 2010 Jake and some friends participated in a local fundraiser, Relay For Life For Cancer. Their team was called The Tighty Whities!
[Brandon, are you wearing flip-flops? And are those SOCKS??? Socks with FLIP-FLOPS????? CrAzY!!!!!]
Introducing The Tighty Whities Team! Way to go, guys and gals!
Many folks in the community and surrounding areas took time to walk, run, or jog for the whole night to raise money for Cancer. The event took place just behind our local Community Centre in Picton. Many teams dressed up for the event, and that's why this crazy bunch are out in public with their "gaunchies".
I think Jake inherited his muscles from his Momma!!! [wink]
Again, members of The Tighty Whities. Brandon asked me who I thought he was "supposed to be". I answered "Edward Scissorhands???" He disappointingly informed me I was incorrect. I think he said he was "The Wolverine" or something like that.
I was wondering...... why Jake..... would be putting..........
a flashlight.... in such.... a safe..... area......
"The End!"
Sunday, September 12, 2010
Your Faithfulness
Through the trials we've experienced the last few years, we naturally have many questions as we go through them. We don't like the trials and tribulations because they can bring us pain physically, mentally, emotionally.....
But in going through these difficult times, I have learned what others have said about going through trials... that you come out stronger and closer to God. And when I say stronger, I refer to relying on God's strength. You sure don't feel strong in the middle of your trial, but if you continue to reach out to God and rely on Him to help sustain you through those tough times, He gives you the strength to get through them and you come out stronger in the end.
The battles that we face don't just usually have an affect on one person, but on anyone surrounding the one(s) going through their war. Take Blake, for example. He is the one battling the Crohn's Disease. It's his body that hurts and aches and suffers in a physical sense. It also wreaks havoc on him mentally and emotionally as well. But his battle with Crohn's also affects others: me, his Mom; and Jon, his Dad. It affects his brothers, Jake & Jared. It affects our homelife and the way we try and lead our lives. It affects the grandparents and the aunts and uncles and cousins. It has reached out it's long arms and affected Blake's friends, co-workers, church family, school mates, teachers, community folk.........
But God does.
And it is up to us to reach out to Him and fully rely on Him whole-heartedly.... to know that HE.IS.FAITHFUL no matter what tomorrow holds.
On August 22, 2010 Blake took his spindly little body up to the platform at church, grabbed his guitar, and played and sang a song as a testimony that is possibly one of the most beautiful songs I've heard.
Unfortunately, I do not have a video camera that I could tape Blake singing it. But I did get some photos of him. In the video below, you will hear the voice of Brian Doerksen singing the song "Your Faithfulness". I have posted the words under the video, which I encourage you to follow along while Brian sings. There are no pictures in the video, only sound.
Blake.... you don't think you can play the guitar very well, and you don't think that you can sing very well (and we all disagree with you!); but I will tell you that the Holy Spirit moved in you that morning and blessed many many people. I can't listen to this song without shedding tears as I think about the struggles you have been through. I am thankful that at such a young age you are able to rely on Jesus to help you through your battles. I've said this before, and you've heard it in The Isaacs' lyrics: "there's not a battle that I cannot win, we've already won the war". Keep your eyes fixed on Jesus. We're so proud of you.
[Please scroll to the bottom of the blog page and hit PAUSE on the blog music before starting the video.]
YOUR FAITHFULNESS
Sung by Brian Doerksen
I don't know what this day will bring
Will it be disappointing or filled with longed for things?
I don't know what tomorrow holds
Still I know I can trust Your faithfulness
I don't know if these clouds mean rain
If they do, will they pour down blessing or pain?
I don't know what the future holds
Still I know I can trust Your faithfulness
Certain as the rivers reach the sea
Certain as the sunrise in the east
I can rest in your faithfulness
Surer than a mother's tender love
Surer than the stars still shine above
I can rest in your faithfulness
I don't know how or when I'll die
Will it be a thief, or will I have a chance to say goodbye?
No, I don't know how much time is left
But in the end, I will know your faithfulness
When darkness overwhelms my soul
When thoughts and storms of doubt
Still I trust You are always faithful, always faithful
Certain as the rivers reach the sea
Certain as the sunrise in the east
I can rest in your faithfulness
Surer than a mother's tender love
Surer than the stars still shine above
I can rest in your faithfulness
I don't know what this day will bring
Will it be disappointing, filled with longed for things?
I don't know what tomorrow holds
Still I know I can trust Your faithfulness
Thursday, September 9, 2010
Off To College!
But only in miles.
Or rather kilometers.....
...... because he is always near to us in our hearts and minds.
We struck out for New Brunswick on Saturday morning and experienced excellent weather conditions all the way. We anticipated rain and wind from Hurricane Earl, but Earl decided to show some mercy and did not really affect many areas of the east. At one point we ran into a bit of misty rain, turning the windshield wipers on only a couple of times, at their lowest speed. The sun shone magnificently with big beautiful white fluffy clouds layering sections of the sky. Perfect travelling conditions.
My brother-in-law, Brent, accompanied Blake and me, and we arrived late Saturday evening and headed to our hotel. After a great sleep we spent Sunday unloading the van and getting Blake settled into his dorm. Then we headed to Wal-Mart to purchase a few things that Blake needed.
Sunday evening we attended the "welcoming service" at Bethany Bible College's gorgeous sanctuary. What an amazing church. And what an amazing service. My friend, Renie, and I understood one another's tears. She was leaving her oldest son behind in New Brunswick, so her eyes were glossy periodically throughout the day. By the end of the church service, my eyes were just continually spilling over with tears. The Holy Spirit just filled the sanctuary and our hearts during our worship time.
Earlier that morning at the hotel's breakfast nook, I spoke with two other moms who were dropping off their sons. We all talked about the tears we shed at these times, and I indicated that we're the moms... we're allowed to cry... it's our job. haha. But God understands our tears. He knows we are leaving pieces of ourselves at the college when we hesitantly climb into our cars and strike out for our homes.... that are many many many miles away from our baby birds.
It was wonderful for me to hear Blake laugh as he greeted friends he hadn't seen since last Spring. Being in the boys' dorm, we were surrounded by young men. Brent chuckled at the sight of so many males actually hugging each other and not embarrassed to do so. I know from Blake's health situation last Spring that so many of these boys care about one another. They're watching out for one another, and that really brings comfort to a mother's heart and gives some peace of mind!
Blake's first official day of school was yesterday, Wednesday. I texted him last night and asked how things went. He indicated that he feels it will be a busier and fuller semester than the last one. I told him that he should not sacrifice his health over ANYTHING, including school. He can always take an extra semester for any course that he struggles with, but he cannot play around with his health. It's hard for me to let go, but I know I have to.... to a certain degree. :o)
Speaking of Blake's health, I spoke with our Remicade co-ordinator for Ontario on Tuesday. She called me to confirm the address of the clinic where Blake's medication would be sent in late October......
Huh?.....
I said, "The specialist's secretary told me that it was illegal for you to send it out there, despite me telling her what I'd been told in the past [that the meds could be shipped from Ontario to New Brunswick]." The co-ordinator said, "There is absolutely no problem in sending this medication out to New Brunswick to Blake, and it will be fully covered under Trillium's Drug Plan."
I just shook my head. I thought, "Would it have been THAT hard for the specialist's secretary to say to me last Friday, 'Michelle, I'm sorry; I was misinformed, you were correct in what people told you.' " Instead I was led to believe that other strings had been pulled in order for Blake to get his meds.
In the long run, it doesn't really matter. The fact is that the kid is receiving the meds he needs. But it just is so frustrating that I am constantly being told something different from every person I talk to.
But I will tell you that I am soooooo happy to deal with our Remicade co-ordinator here in Ontario as well as the co-ordinator in New Brunswick. They are both delightfully kind women and I wish everyone in the world could be even half as terrific as these two ladies.
So the bottom line is that Blake will receive a dose around the end of October and then his next dose will be about a week before Christmas. I am thrilled. I am doin' the happy dance. hahhaa.
Well, Jon is eagerly anticipating his time on the computer, so I need to stop typing. I want to close with a few pictures of Blake in New Brunswick. Please pray for him as he comes to your mind.
Blake in his dorm room
Blake's desk area
Storage space under his bed
Closet (not much room for clothing once we put the fridge in there, but there wasn't room anywhere else for the fridge.)
Blake giving his girlfriend the tour of his room via Skype (sorry it's blurry)
Blake chatting with his Brasilian sweetheart, Anelyse via Skype. (Hi Anelyse!)
l-r: Sydney (Blake's cousin); Andrew (Blake's roommate); Christoph (Blake's friend); Blake
Friday, September 3, 2010
Stamp of Approval - Blake Health Update 2010/09/03
for me to officially announce......
that Mr. Blake Found......
after approximately 11 months of numerous phone calls, paperwork, prayer, and even the odd time of some hair-pulling........
has received.......
word from his Specialist's secretary......
at 8:55am......
on September 3, 2010......
that funding for his miracle-drug Remicade......
is........
finally.........
[hold onto your seat....]
'
'
'
'
'
'
'
We have been notified that, not only will Blake's cost of Remicade be covered but, he is also able to receive his medications when he is out-of-province while attending college in New Brunswick. This means we do not have to cart him back to Ontario every eight weeks for his infusions.
Today, I am one extremely happy Momma.
Just yesterday morning I had a conversation with the Specialist's secretary. She explained to me that I had been misinformed by a few people with regards to Blake's situation. For almost a year now, I seem to get a different story from absolutely everyone I talk to regarding Blake's situation.
I had been told that Blake could, once approved, receive his meds in New Brunswick as long as it was shipped from Ontario to New Brunswick. I spoke to TWO different gentlemen from the Trillium group on TWO different dates who both confirmed it was no problem. I also spoke with a special pharmacy who deals in dispensing Remicade, and they confirmed that it could be shipped in a special refrigerated package and that it must be used within three days.
Our Specialist's secretary said she called Trillium and the pharmacy and was told that it was illegal to ship the meds from Ontario to New Brunswick. She also said she was told that it could not be shipped because it needed to be refrigerated and that it needed to be used within 24 hours.
I don't understand why we are being told completely different stories.
Then the secretary said that Blake would likely have to change his province of residence to New Brunswick and then apply for health coverage there.
Huhhhh??????
Ummmm.... how about NO!
It all sounded very suspicious to me.
Anyways, she called this morning at 8:55am to announce that coverage for this medication will be provided to Blake and that he may receive his infusions while attending college in New Brunswick. They will call him with the date and time of his infusions.
She confirmed we are covered for one year, and at that time she will fill out paperwork to renew the Section 8 coverage and that I am to continue to renew the Trillium coverage.
Yes. I can do that!
Just yesterday, after my phone call with the secretary where we discussed all these contradictory statements given to me, I was frustrated because I had worked so hard on my phone calls and keeping good records of conversations, etc. I had spoken to so many people, including politicians offices who were, by the way, of no help to me. I felt like I had beaten my head against the wall. I had gone out later that day to cut the lawns and I could feel myself getting somewhat angry for all these delays and road blocks.
Then it was like a light bulb came on.
...."praise God anyways".
So I pushed out the negative thoughts and said, "Lord, I'm gonna praise you anyways. YOU know the situation and You have a plan. It's not going well here, but You have a reason why. I'm just gonna praise You anyways".
I continued to cut the lawns, row after row, and then the angry thoughts would creep their way back into my thinking. Then, I would hear, "praise God anyways".... and so I'd starting praising Him all over again. I kept pushing out the angry thoughts, allowing the Holy Spirit to do His work.
"Thank You, Lord. You're watching over us."
"Thank You, Father. Your Word says you'll never leave us nor forsake us."
"Thank You, Lord. You have a plan for this situation. You're in control."
"God, You are good. You are so good."
"I will praise Him, I will praise Him, praise the Lamb for sinners slain. Give Him glory all ye people, for His blood can wash away each stain."
And then, 18 hours later, I get the call.
And just how amazing is THAT!?
'
I've had my "God moment" for today.
'
So tomorrow we leave to take my little boy back to New Brunswick. He's gained almost thirty pounds back since June. He's feeling better, looking better, sounding better. Like The Six Million Dollar man, he's stronger... better... faster. Well, OK, I might be stretching it on the "faster" part, but you get my drift.
'
He has spent the day packing, running last-minute errands, and tonight is relaxing with his best bud Billy. They are downstairs now attacking the XBox360. It gives my heart happiness to hear them laughing and hollering at one another down there.
'
Please remember us in prayer as we travel all day Saturday. My brother-in-law, Brent, is able to go with me, and I'm very appreciative of that. The van is almost all loaded up and we strike out early morning.
'
Also remember in your prayers to thank our Lord for His many blessings. What a trial these last few years have been; but we come out victorious because we go through our battles in the name of the Lord.
'
There's not a battle we cannot win; we've already won the war! Hallelujah!
As a footnote, I'd like to include this video. It was posted on another blog that I follow. The lady with the hat in the video passed away this week to be with Jesus after a battle with cancer. I thought this was a beautiful song, sung in a "round"; it's message seems to fit what I was just writing about. Enjoy.
[Remember to pause my music at the bottom of this page.]
Hearts Uplifted