Humira.... So Far So Good

I don't know how authors can write so many books. Their words are always fresh and new. 

Unlike mine.

I feel like I'm saying the same old thing over and over again. Some days the words come, and other days, like today, I can't even think of an opening sentence! 

Guess that's why I don't write books. 

I wanted to update you on Blake and how things are progressing. 

Last Wednesday and Thursday the doctors tried to get Blake's pain and nausea under control after we were taken from the Emergency Dept at Kingston General Hospital up to Room MSSU9 on Davies 5. 

They had decided that Blake would begin the treatment of Adalimumab, also known as Humira to fight his Crohn's Disease and Ulcerative Colitis. 

It's a drug that will be injected, as opposed to an infusion, such as he received with the Remicade.

We figured it was going to happen on Friday, but Thursday, September 22nd around the supper hour, nurse Johanne walked in with a handful of needles. 

The first dose of Humira calls for a quadruple dose. Four needles, each containing 40mg of a hopefully healing medicine, were injected into Blake's abdomen. 

I think because of the fact that it all happened so quickly, we didn't really have much time to mentally prepare. We were getting geared up to receive the meds on Friday, after we talked a bit more with the Specialist. However, the nurse showed up with the medication all ready to go. The pharmacist had delivered it personally to the nurse's station because of it's extremely high cost.

So.... four separate needles containing Humira were injected into Blake's abdomen.

After the injections, the nurse indicated to Blake that she would return in ten or fifteen minutes to re-check his vitals. I watched Blake closely for any signs of reaction. He seemed very calm, yet distracted. I asked if he was alright, he indicated yes; however, I knew he wasn't. I said, "Are you sure?", and the dam broke loose.

I think all the stress and the sick-and-tiredness of being sick and tired was just too much for him. 

The more you learn about all these drugs and their side effects, the more overwhelming things can become. The unknown can be extremely frightening sometimes. Suffering from a chronic disease is scary. 

After we had our "it's gonna be alright" hug, the nurse returned to re-check Blake's vitals. Everything was good. There were no reactions to the new medication and I felt a great sense of relief, hoping that the medication would begin to heal my son's intestines. 

Blake put in a good night, with the nausea disappearing and the breakthrough Dilaudid pain meds not having to be used. Friday was a good day for Blake. He was still taking 2mg of Dilaudid every four hours, but his pain was less, and I noticed his complexion was clearing up again. I don't know if the clear complexion was from the Humira starting to work or if it was because they had increased his Prednisone to 50mg while in hospital.

By Saturday his pain was much better. When doctors pressed on his abdomen, he felt no pain at all! Amazing!!! So at his 2pm dose of Dilaudid (hydromorphone), Blake asked if they would cut his dose in half. 

The doctor said they could do that, and if all went well, he could go home that night. 

Whooooooa up here, dude!!!!!! 

I was NOT in favour of THAT!

I let my concerns be made known to the doctor, indicating that I did not want Blake sent home so quickly after cutting his pain meds in half. I explained that we have brought him home from hospital before, only to have him experience pain and need to return again. I respectfully suggested that perhaps it would be best to keep him a few more hours until Sunday, to which he kindly agreed. 

Whew!

So Sunday morning proved to show that Blake was well on his way to better days. After a surprise visit from my Uncle Graham and Aunt Dianna, we collected our prescription notes and said our goodbyes to our wonderful nurse (one of many terrific staff members at Kingston General Hospital) and also to our roommate, David, who very kindly coloured me a pretty picture from his Smurf Colouring Book and gave it to me to keep. 

The ride home was a little uncomfortable for Blake, so he experienced some discomfort that night. But as each day has passed, his health is getting better and better. 

I have spoken with the representative who is looking after the Humira. Blake will be receiving some "Compassion Doses" until our funding is once again approved and in place. 

We see his Specialist on October 7th. At that appointment, we will discuss what's been going on with Blake's health, and   he will receive his second dose of Humira. Blake's second dose will be a double dose totalling 80mg. Then the following dose, and all future doses, every two weeks, will be single doses at 40mg.

Blake will learn to administer this drug to himself, which will be a good thing for him when he returns to university in New Brunswick, likely in January 2012 if his health continues to improve. 

Today, Wednesday, he seems stronger. He has fuller cheeks on his face, due to the Prednisone; but it's just good to see his face not all sunken-in.

He is currently racing the clock to submit an assignment and finish an online quiz for his online courses. He had forgotten all about the one-hour time difference from Ontario to New Brunswick, so he's trying to beat the clock. It's now one minute after the hour and I haven't heard him scream yet; so hopefully he got everything submitted on time. 

I have a couple of pics from the hospital, but Blake gets so annoyed with me when I take pictures. I told him someday he'll want to look back at them, but he's putting up a fuss, so I might wait a bit before posting them..... just to see if he changes his mind. Of course that would involve me transferring them from camera to computer, which seems to take me FOREVER to do! 

Because my eyelids are getting heavy, I shall bid you adieu for this evening and will hopefully take some time tomorrow or Friday to update you on my sister. I've been very lazy this week after running from hospital to hospital, so I've been slack on reporting the wonderful news of her special gift. Maybe I'll get the pics loaded up for that blog post! 

Sorry this was a "yawner" of a post. I can only hope I get back into the swing of things soon! 

Thank you to everyone for your prayers for Blake and our family. I appreciate it very much. 

Hello Once Again, Dear Hospital

And we are coming to you live once again from Kingston General Hospital! 


I brought Blake here to the Emerg Department late last night, actually more like the early wee hours of the morning. 


His pain over the last three weeks has never really gone away, but was controlled with some morphine. This last week has been a bit rougher with him needing regular doses as well as breakthrough pills to help keep the pain at bay. 


Yesterday involved a lot of pain and quite a bit of vomiting. He was weak and just couldn't keep anything down. We were hopeful to wait it out, as Blake's appointment with the Specialist here in Kingston was planned for today, Wednesday, at 3pm. 


However, as I watched Blake he continued to progress to a weaker state. I took his pulse and he was approximately 140 beats per minute. Way.too.high. I was told if he ever got to 150, he needed to be brought to Emerg. Close enough for me! 


We hit the road and arrived at KGH at a perfect time. We went straight through to triage and registration and then waited only about 10 minutes before entering the Emergency Room. That is FANTASTIC timing for Kingston! Usually that only happens in Picton! 


First they tried to get the pain and nausea under control. Then we went through a long line of doctors and interns and resident doctors.... each one wanting to hear the story of Blake's last two years in detail. That is the one thing that Blake hates.... telling the same thing over and over. I remember last year he looked at a doctor and said something like, "It's in my chart. You can read it there." 


Must remind him to mind his manners! [grin]


But it's understanding when you don't feel well. He actually just snapped a little at me a few minutes ago. The nurse brought in some medication (can't remember what it's called) that gets injected in your stomach. It helps to prevent blood clots. Blake didn't want it, but I 'suggested' he take it. I'm not gonna have even MORE problems from a blood clot all because he didn't want a little "ouchy" on his tummy.


He apologized afterwards. I've noticed he's very "short" lately, not only with me, but other members of the family. Even his Grandma! 


Whoa! 


Highly unusual! 


But understandable. 


Anyways, back to what's going on. While in Emerg last night, in the curtained cubicles, there was a gentleman who was an inmate. He had two police officers parked in comfy chairs at the foot of his bed. The poor guy was moaning from pain.


Being only about three or four feet from him with only a pink plaid curtain between us, I couldn't help but 'eavesdrop' that he had a hole in his stomach or bowel; doctors weren't sure yet which one. He was in so much pain. My heart was breaking. I so badly wanted to go and help. 


They were being wonderful with him, though, in trying to get enough pain meds into him to lower the pain. In mere moments he was rushed off to the Operating Room. I could hear them helping him to get changed from clothing to a hospital gown. Then I heard the officers' cuffs being re-attached to him as they clanged against the metal on the bed's siderails. 


That broke my heart. Even if he'd wanted to escape, he wouldn't have gotten far in that much pain. I know it's precautionary and routine, but still broke my heart. 


I don't know how things turned out because he, of course, was never brought back to the Emerg Dept. But I feel folks are in good hands here, so I'm sure he's recuperating here somewhere, under watchful eye! 


So, back to Blake. 


Basically it's the same diagnosis as before. Intestines are not blocked, but rather quite inflamed. Prednisone is being administered to get the inflammation down. Dilaudid is what is being given for pain rather than morphine. It's apparently a little more effective. 


Dr. Patterson, a Gastroenterologist, came in to see Blake today and confirmed he will talk with our Specialist, Dr. Depew, and we will see about starting Blake on Humira. 


I mentioned to Dr. Patterson that the only big medicines I hear being used to treat Crohn's Disease are Remicade and Humira. I asked him what the next med would be for Blake if the Humira didn't work. He simply indicated there wasn't one. We would possibly, at that point, have to look at cutting out a chunk of bowel.


Now, we have been told in the past that Blake did not have enough good areas in his bowel to leave (that all of the intestines would have to come out); however, Dr. Patterson said there was a good chunk of bowel that still looked good and could be hooked back up to the ileum without any problem. That was good to hear! 


But I am hoping that the Humira will be effective in treating Blake. That's what I will be focussing on right now. 


That, and the fact that SOMEONE in this hospital needs to bring ear plugs to Blake so he can sleep tonight..... the man in the bed next to him is the loudest snorer I have ever heard in my life!!!! His name is David. David is..... um.... large. And David is loud. And he seems half deaf, so everyone yells when they're in here talking to him. No rest for Blake tonight, I guess.


I know I've been all over the map with this post. I've had to do it in sections and also while dealing with a headache, so I'm sure it's all a mess. And although it's to give info to others, it's basically a journal for me to refer back to at any time. 


I will try and make the next posts more structured. [grin]


And a little more exciting. 


For now, that's it. Maybe we'll have more news tomorrow. I'll likely drive back home tonight and head back down here tomorrow. I need to sleep in a horizontal state tonight; can't do another night in a chair! 


Tomorrow maybe I'll have some time to post regarding a very special gift one of my sisters gave to a friend. We are at a hospital one-hour east of our home. My sister is in a hospital two-hours west of our home, in Toronto. Let's just say it involves a liver and a very giving heart.


So until tomorrow, I shall bid you adieu. Goodnight.  

Here We Go Again

Well, it's been a long time folks. But here I am again. Reporting from Blake's hospital room.


I have not been faithful in keeping the blog updated regarding Blake's health, which is too bad because I use it as a journal to record what's been happening. That way I can always refer back to it.


Unfortunately, I've been slack in that area. 


Blake's health over the last year has been somewhat of a small roller coaster. He has been receiving the Remicade treatments; but other than one dose, they've never lasted the whole eight weeks. 


In June of this year, we met with his Specialist and we explained that his health has not been all that great, as well as the fact that the meds lose their effect after the fifth to sixth week. 


The doctor did not hesitate at all to bump up the doses by two weeks, which we were thankful for! So instead of a dose every eight weeks, Blake would start receiving a dose every six weeks. 


In May of this year, his dose only lasted two weeks to the day. We thought perhaps it was just a fluke or a glitch. However, July's dose proved to be the same thing.


We contacted the Specialist's office; however, we were told they were on holidays until mid August and that we should seek assistance from our own doctor in our hometown, or if things got worse, we should go to our local Emergency Department. 


After calling our own doctor and discovering she was on holidays as well, we sought help from the Emergency Department. We basically explained that Blake needed something to help with pain control until we could see the Specialist a couple of weeks later. 


The doctor was wonderful and did not hesitate to give Blake some relief with morphine. 


The unfortunate part was that we didn't get enough morphine and had to seek medical attention from Emerg again the following week. The doctor on duty was my husband's doctor and was helpful as well in writing a script for morphine for Blake. 


We then saw our Specialist the next week. It was my suspicion that perhaps the Remicade was no longer doing its job; that Blake's body was starting to reject this drug that we have referred to as his Miracle Drug. 


The Specialist was concerned that perhaps there were other reasons for Blake's pain and suggested getting a CT Scan and then possibly a colonoscopy, depending on what the Scan showed. 


He also wrote a script for more morphine, as Blake's supply was once again getting low. 


Later that week, Blake's pain was increasing, requiring more morphine. Because the doctors were only writing the prescriptions for 40 tablets, Blake ran out. 


We tried to get answers from our Specialists office as to the results of the CT Scan, but after a week of calling their office, we were told they only had unverified reports and that the doctor would get back to us once he had a chance to review them.


So because we could not get answers from the Specialist, and Blake was out of morphine, we headed back to our local Emergency Department for more morphine.


Well....


let me tell you....


THAT was an experience. 


The doctor on duty, who is not well known for his great attitude, lectured us on how we should be seeking narcotics from our own doctors and NOT at the Emergency Department. We tried to explain to him that when you can't get in touch with your Specialists OR your doctors, what else do you do, he began to tell us how he doesn't know that we won't sell them on the street. 


Insert frustration here! 


We tried to explain to him that we were aware of how some people abuse the system and that the Emergency Department doctors have policies in place;  however, we wanted to know what else we were supposed to do when we already tried everything in our power to get the help from the necessary people. 


His attitude stunk and it quite tried my patience. He said he'd write the prescription "this time", but we should seek to get lots of repeats on hand because of the disease that Blake suffers from. 


Seriously dude???? What do you think we've been TRYING to do???? 


Sorry, folks. I know that I'm rambling on here, but it is so frustrating when you feel like you're beating the head against the wall. 


I can tell you that I likely will wait in the waiting room at Emerg and wait for a shift change, should that doctor be on duty again. I have no time for arrogant, head-up-their-own-butt people. Sorry. I know I'll likely regret writing that, but for right now it feels very therapeutic! 


So very early Sunday morning, 1:30am-ish, my Mom calls me. Blake had been staying with her and my Dad. She said Blake's pain hadn't let up for a few hours and she was concerned. Jon immediately said we would head to Emerg; however, we would be heading straight to Kingston this time to ensure he was admitted and cared for until the pain got under control and decisions were made as to future treatment. 


Arriving at Emerg at KGH, we were treated very well by the staff. They worked to get Blake comfortable and get his pain under control. 


Thankfully they decided to admit him. I'm wondering if the doctor at Emerg noticed I had brought bags already packed, expecting to be admitted. 


He kindly said that they would get his pain under control and he'd see about getting us admitted. [That's MY kind o' doctor!] 


Word shortly came back to us that he would be admitted and that an x-ray and colonoscopy would be happening before he was released. 


Over the next day or two, Blake saw many different doctors and specialists (none of them being our own specialist), all asking the same questions, all poking and prodding at his already-very-tender guts. He gets frustrated having to tell the story over and over and over to different folks. I remember at one point in 2009 or 2010 during one of our hospital visits, he looked at one of the doctors and said, "It's in my chart! You can read it!"


Blake's attitude has been, for the most part, pretty good over the last two years. But he has his days. 


I've noticed that since he's been on morphine, he's a little edgy by times. He always is prone to 'snap' at ME; but when his 'snarkiness' was directed to my Mom, we knew that he just wasn't feeling himself at all.


The x-ray that was done on Sunday showed some inflammation, but nothing too alarming. Rather than a colonoscopy, the doctors just performed a scope on Blake. They also took a couple of biopsies at the time. We have not heard any official results from that scope. Sounds like we won't hear anything until we meet with the Specialist in a couple of weeks. 


As of right now, they are treating Blake with morphine for pain, as well as giving him some Prednisone which helps to settle down the inflammation. 


Blake HATES the Prednisone. It throws his system off, in that he can't sleep at night. It increases his appetite, usually; however, his appetite has not been good since we've been admitted. Yesterday and today he's hardly eaten anything. He had to take a Gravol to settle his stomach about an hour ago. 


I know he's anxious to get home; however, I am quite content that he's here. It's too hard to get admitted to hospital, so once he's in here I like him to stay! 


At this point they are looking at sending him home tonight or tomorrow. They want to get lots of this I.V. Prednisone in his system to settle the inflammation of the intestines. 


Apparently we will see the Specialist in a couple of weeks, at which time we will discuss whether he feels the Remicade is still doing it's job, or whether we will switch to Humira. 


The side affects of these drugs is quite frightening; however, what else do we do? We are trying to watch the foods that Blake consumes so as not to aggravate his intestines; but sometimes even plain ol' water bothers him. I guess the trick is getting the intestines healed up first and then trying different foods. 


It's been two years and days like today I feel like we're right back at the start. There's so much to learn. I joined a Facebook page regarding Crohn's Disease & Ulcerative Colitis. Hopefully to read other's stories will prove to be of some benefit. 


Anyways, folks, that's about it for now. I know this was a long and rambling post; but so many ask us for details, it's just easier to post it all here. 


Your prayers and concerns for Blake (and our family) are greatly appreciated. We are thankful to be sheltered under the Lord's wing and surrounded by a caring bunch of family and friends. Despite the physical ailments, we are truly blessed. 


I will attempt to keep this blog more updated for those who have been asking. :o) 


Regular up-to-date posts are always on Facebook. Feel free to add me as a friend to stay up to date on Blake's situation at "Michelle Fraser Found".

A Long Overdue Family Update

I am sitting here in front of the computer and I AM NOT MOVING until I finish this post! haha

All week long I've been trying to take half an hour to write a simple update. Then I think, "Well I'll just get [whatever] done first, and THEN I'll write". And of course I get side-tracked. It's happened all week, and today is the day that my hiney is not moving outta this chair until a post is complete!

Before I started the post, I read an article in our local newspaper about a dog that had wandered from its home here in The County and was outside for nine nights in frigid weather. The owners saw evidence of tracks leading to open ice where they assumed their dog had fell in. As the days and week passed, they had given up hope, until a neighbour happened to glance outside one day and saw what looked like the Great Dane in the field. He called the owner and they went out and the poor ol' six-year-old dog was just barely alive. They got him to the vet, and he is coming along fine, after losing a whopping 50 pounds. So naturally, my eyes were welled up with tears by the time I was done reading.

Then I turn to my blog site and get caught up on one of the blogs I follow about a little girl battling cancer. I don't know the family personally.... I just followed a link that I stumbled upon one day in 2009.... but I've been following their progress. They just found out two days ago that her MRI shows more signs of cancer, despite their battle thus far. The family is sickened and heartbroken. They had anticipated a good report after battling this disease for over 19 months now. They struggle with their emotions right now, knowing that the Lord has the power to instantly heal their little girl but wondering why He hasn't.

Honestly....

Why do I bother putting on make up in the mornings only to have it washed off with tears.

We just don't have the answers that we need sometimes to deal with life's situations. We question why we must endure the pain, the sadness, the frightful moments that we encounter.

But God continues to sustain. He promises to never leave us. In fact, He carries us through these times. Sometimes we're like a child who is being carried against their will, where we kick and hit and fuss and scream because we don't understand. But if we just can get to the place where we accept what's been dealt and continue to persevere and move forward, we can look back and see God's fingerprints and presence all over our situation. Those moments of reflection are good for the upcoming trials and tribulations of our lives.

Yes. That's right. There's more coming! More pain. More hurt. More sadness. We might as well accept that fact. BUT!.... [gotta love those "but" moments]... we can rest assured that God does not change, and He will be there to carry us once more.

As this little girl, Kate, and her family walk through this battle, please remember them in prayer. The button on the right side of the blog shows "Pray For Kate". Click on over to their site and support them in prayer.

We've been no stranger to battles ourselves over the last few years. Our household has been turned upside down a few times; but I want to just give some updates to you as to the life and times of The Found Family over the last while.

And it's all GOOD!!!!!

Let's start with Jon & Jake.
I'm grouping these two crazy characters together because they've been glued to the hip over the last number of months.

Jon and Jake have been travelling in portions of Canada and The States, and I think Jon is quite excited to have one of his "little" boys accompanying him. He enjoys having the company and the help. Jake has always had an interest in the truck and helping his Daddy. It was pretty much the only way he could get time to spend with his father, since Jon was away so much of the time when they were younger.

Jake has sat in the passenger seat many times, soaking in every movement Jon makes. He's watched Jon carefully to know when to shift, when to hit the clutch, when to signal, when to brake, how to turn the wheel when backing up, how much distance is needed when turning....... he's catalogued all these things in his head and is now sitting in the driver's seat. Although he was driving that big rig by the tender age of 14 [usually only across the flat prairies, thank the Lord!] and has sat on his Dad's knee since practically birth, helping to steer the truck, he has now become legal to drive the eighteen wheeler.

He got his medical done yesterday along with writing his driver's test for an AZ license. His appointment for the actual driving test is at the end of this month. The loving mother in me is extremely proud of his accomplishments. The worried mother in me wants him to fail that driver's test.

Know where I'm comin' from?

[sigh]

I don't think I'm ever gonna stop being concerned about my kids. Even when I die and I'm in Heaven, I can see myself walking with Jesus, looking down at the happenings on earth and watching my children and saying to Jesus, "Well are You just gonna stand there and let that happen???" He'll smile and wrap His arm around my shoulder, and in a most lovingly caring way, He'll say to me, "Shush up, woman. I've got it covered". haha.

I am glad that Jake and Jon have this time of bonding. It's funny to hear them gripe about one another, but they love each other and I think they'll be fine. They are currently working on ways to cut their road expenses. The purchase of a small refrigerator and 9-volt oven to use in the truck have already saved them money. It's cute to hear Jon get so excited about it. Says he should've done this twenty years ago. haha.

Health wise, they are doing great, although Jon should likely eat more salads. BHAHAhahaha. Sorry, Jonny. Couldn't resist. Jon looked at himself in the mirror the other day and came to the "sudden" realization that he had gained weight. I truly think that their new method of eating in the truck will help his situation.

As they come to your mind, please pray for them... for travelling mercies. It's hard not to worry about them; but I must keep in mind that God is still in control.

As for ME....
I could stand to lose a bit of weight myself. I've porked on the weight since Christmas. Not that my clothes feel any tighter, I just feel fatter. I think it's a lack of exercise. I borrowed my sister's treadmill, and I must say it works amazing.... when I actually USE it! Jared has been teasing me about using it, or rather the lack of using it. I just don't have the energy. And I know once I START using it, I WILL have the energy. It's just a matter of me developing a new routine.

I don't get 'inspired' often, but for some reason a few weeks ago, I was inspired to paint my bedroom. It has had white primer-painted walls for about 18 years now. I thought it was time for a change. hahhaaaa. I guess I just never felt the need to get it painted. There was always something else more important to do. And I'm only ever in there to sleep or fold some laundry. And when I'm sleeping, my eyes are closed and it's dark and I can't see the colour of the walls anyways.

But I decided it was time. So I went to the store when the paint was on sale and picked a colour I liked from the forty-ka-jillion colours to choose from. I chose a nice coloured green.... reminds me of string beans... Jake says it looks like vomit. I've seen a lot of vomit in my days with raising three boys; but I've never seen vomit the colour of string beans.... unless of course I'd just finished EATING them only to see them re-surface!

Well, I don't care what Jake says, I think it's a nice colour. The difficult part will now be to find a bedspread and curtains that will match. Should've got those first, I guess, and then chose the paint colour. Oh well. It's done. After 18 years. I like it. That settles it.

Danielle came over to help me tear wallpaper down in my kitchen. (I TOLD you I was feeling inspired! What is WRONG with me???!!!) She LOVES removing wallpaper. Can you believe that? She doesn't want to help me ever put paper ON the walls, nor does she want to help with painting; however she will be here in a heartbeat when the wallpaper needs to come down. I think she might have a psychological imbalance there somewhere. Jus' sayin'.

I also need to finish painting the trim in the living room. I bought the paint and got the hallway trim and doors painted (need to second coat some of it), but then for some reason I moved onto the bedroom. I start a project and then never finish it. Ugh.

Starting Monday, I need to get back into some paperwork again. I procrastinated over the Christmas holidays. Tsk-tsk. Need to get things caught up again in that area.

And other than running Jared around, that's pretty much what I've been doing, folks. Soooooo exciting...... not. haha.

And speaking of Jared....
This is one busy little character. I have been running non-stop with this fellow. He has been quite involved with highschool basketball, which includes an out-of-town tournament tomorrow and Saturday....

However.....

there is something ELSE taking up his time. Or rather I should say someONE!

Jarey has a girlfriend... Jarey has a girlfriend.

I am most pleased to announce that Jared has been "dating" a young lady named Karli. And she's divine. She is very much "mother-approved". What a lovely young lady. She's smart, polite, courteous, thoughtful and beautiful. AND her mother and I get along and can finish each other's sentences! hahahaha. Jon and I have both shared with Jared that he's got a good girl and if he messes this up, we'll be keeping HER and sending HIM on his way! haha.

It's been fun for me to hang out with Jared, while Jake is with Jon, and Blake is at university. I have always enjoyed watching the boys entertain with music and be involved in sports events, and Jared has certainly kept me hopping with the soccer and basketball and hockey games. He gives his all, and never ceases to entertain his Momma.

And finally, we have Blake.

I am sooooooo excited to report that Blake's health has been nothing short of amazing these past two months. Blake received his last dose of Remicade on December 13th, five days before flying to Brasil for four weeks. While in Brasil he experienced no pain with his Crohn's. His dear girlfriend, Anelyse, and her darling family spoiled Blake to great lengths and fed him foods that were obviously intestinal friendly! This week marks his eighth week since the Remicade dose and he feels fantastic. PRAISE THE LORD!

He said he has experienced no pain or other symptoms, and he will receive his next dose this coming Monday (Feb 7th). He has never made it a whole eight weeks without some type of pain, so we are greatly rejoicing!

He continues his studies in New Brunswick, and I will be quite excited to see him in March when we bring him home for his March Break. Not seeing him over the Christmas holidays has really made everyone here at home aching to see him.

And no, I was not upset about him being in Brasil over the holidays. My main concern was his health, and because he had a dose before departure, I was not concerned.... ok... maybe 1% concerned.... maybe 3%... but that's all. I was happy he could spend this Christmas with Anelyse and her family, since we got to have Anelyse here with us last year. And I was very relieved to know that his feet were on solid ground (upon arriving in Brasil and then again back in US and Canada).

He is experiencing an extremely heavy semester this term, so please pray for his mind and for his health during this stressful time. Stress can trigger Crohn's flare-ups, so he must pace himself accordingly. In the meantime, he is so thrilled that his health is presently good. And three cheers to the "higher ups" at his university who have authorized the kitchen staff to prepare healthier meals for their students.

Hip-Hip-Hooray!!!!
Hip-Hip-Hooray!!!!
Hip-Hip-Hooray!!!!

This will help Blake immensely, so he doesn't have to spend time preparing all of his own meals and can concentrate on his studies!

Oh, and might I do a bit of motherly bragging for a moment? Blake made the Dean's List last semester with a 3.56 GPA. We are very proud of him and know that the Lord is gonna use this boy..... man... [ok... but he's ALWAYS my little boy] in so many instrumental ways. The Lord actually already has used Blake for His glory during his whole illness! Expect to see that boy doing some amazing work for the Kingdom!

And on that note, I think I should close this post. You've had lots of reading, and I really have only given you a few hi-lights of what's been going on. But rest assured we are doing well at the moment. It is now our turn to lift up so many others that are in the midst of battle themselves. We were supported by so many during our afflictions, and we want to now pay it forward.

Until next time, God bless.

My Busy Boys

One would think with this "skeleton crew" on duty at our house, I would have lots of "spare time".....

NOT!

At this very moment I am actually taking my first break in quite some time. I'm in the rec room in front of the woodstove and the television and the computer! ha. I have "Saturday Night Hockey In Canada" on the tube, and just watched The Leafs goalie make an amazing save. Looked more like he was playing soccer, as he bounced the puck off his body and into the air. Fabulous save.

And speaking of soccer, I must update you on my youngest son's achievements this week. Jared's game last week proved to be quite intense as the PECI Panthers battled Nicholson for the Bay of Quinte championship title. I had a funeral to attend and then headed to the game, where I found our team down 2-1. The boys worked hard to regain momentum, but Nicholson fought through and won with a score of 3-1. You can see a fabulous photo of Jared (dressed in black & white) and a write-up of the game in The Picton Gazette by clicking HERE.

But even though the Senior & Junior PECI Boys Soccer teams lost last week's games, both teams moved onto COSSA (Central Ontario Secondary School Association) in Port Hope on November 4th. I am proud to report that Jared and his teammates won their first game and moved on to the finals. After a tough battle, they were defeated by one. Congratulations on your Silver, gentlemen. First place last year and second place this year..... that's a lot to be proud of!

The Senior team won their first game and moved on to the finals as well. Tying up the game, they treated the crowd to some overtime soccer where they scored the game winning goal, taking home the Gold. Congratulations to the Senior boys for their first-ever COSSA Soccer First-Place title! I am definitely a Proud Panther Parent!!!!!

[Oh... hang on.... big fight on the tv in the hockey game between a Leafs player and a Sabre.........
OK, it's over.... two in the penalty boxes! haha]

Anyways, the rain came down for most of the day in Port Hope, and unless there's lightning, you continue to play. The umbrellas helped the spectators somewhat, but we were pretty damp for the day. Unfortunately today, as temperatures drop, I am feeling the results. My poor ol' joints are aching quite a bit. I was hoping the woodstove would help, but I can't seem to get this heat to stop the throbbing in my legs and lower back. Sign of old age? [grin]

It also didn't help that Jared had a double-header in the cold hockey arena today. He won his first game, and then stayed to fill in as goalie for the next game, which resulted in a win as well. I'm tellin' ya, that boy just makes sports look so easy. He gives it his all, no matter how he's feeling. And those glove-saves in the goalie's net make it look like he's playing baseball!

I was recently asked if I really enjoy watching my boys at their sporting events. My answer? "Ohhhhh yaaaaaaah!" I really really do love it.....; wish I was warmer, wish I was dryer, but oh yah, baby, I LOVE it. I am so proud of them. Just like when I watch them perform with their fiddles and make so many people happy with their musical talents..... it makes me so thrilled. I don't think the boys will truly understand that until they become parents themselves. Or maybe it's just a Mom-thing. I don't know. But I do know I'm proud of them and love them sooooo much.

I never stop being concerned for them. Jon and Jake delivered in Chicago this morning, and I see on Facebook that they are staying at a hotel tonight in Chicago. Jon wrote that he had a nap while Jake went swimming in the pool downstairs. After his nap, Jon writes that he went to check on Jake and saw that he was in good hands! (Apparently there was a young lady swimming as well!). So MY first thought is: "Why on earth is my husband leaving my baby unattended in CHICAGO, of all places!". I replied to Jon's comment on Facebook by stating that perhaps it would be in Jon's best interest to ensure my son's safety in that city or else his transport would be his new home! And Jake can spend the winter at home with ME!

What's hard for me to remember is that Jacob is an eighteen (almost nineteen) year old boy, and when JON was that age, he was travelling to Chicago ALL BY HIMSELF! It's no wonder his poor mother worried and never wanted him in the trucking industry. I didn't worry about Jon taking Jacob with him in the truck because they're TOGETHER; but when hubby is snoozing away and Jake is walking around by himself...... well..... let's just say I'm likely not gonna sleep well tonight. I've said this in previous posts, but can I once again state that I wish my children were still babies, toddling around at my feet?

And my eldest son that is around a 13-hour drive away is not excluded from my concern either, although I must tell you that he is doing WONDERFUL. Blake received his infusion of Remicade on October 26th in New Brunswick. By that evening, he felt considerably better! In fact, I think he stated he even felt better that afternoon! I don't know what ingredient in that drug makes it so effective, but "hats off" to the man or woman that discovered it!

Around the middle of this past week, I had sent Blake a couple of messages asking how he was feeling, as I hadn't really chatted with him much since his infusion. He said he was "fine"... his favourite word! I said, "Well, on a scale from one to ten, one being bad and ten being perfect, where are you on that scale?" He replied, "A twelve!" YIPPEEE! I was thrilled.

The other night he called and said he was interested in playing some pick-up hockey with some other folks in Sussex. I had to chuckle a bit because Blake has NO interest whatsoever in sports events. (He played T-ball as a little boy, and he played house-league soccer for about two years as a young boy; but his interests have always been more in music.) So I was taken aback when he said he wanted to play hockey. I said to him, "You realize that's the sport with the little round black piece of hard rubber that you chase across the ice with a stick while on skates, right?" hahahhaaa.

Then he informed me that their ice-time was at 10:30 at night! Oh brother. All I could think of was that Blake needs as much sleep and rest as possible with his disease, yet he's heading out to play hockey at 10:30 at night? But, as a friend reminded me today, it's only pick-up hockey, so if he gets tired and needs to sit down, then it shouldn't be a problem. It's not likely to get too aggressive for him. I just hope he listens to his body!

He still has a very busy schedule with his school work, and he is continuing to make most of his own meals. I am hoping that with Jon and Jake trucking so hard lately that we will have a bit of extra money for December so we can maybe fly out and spend some time with Blake before he heads to Brasil for Christmas and New Years. I'm trying to not get my hopes built up in case it doesn't work out; but I sure would like to see him before he heads out. Otherwise I won't see him again until March. It's certainly an adjustment after spending the whole summer right by his side as we were in and out of hospitals. But at least his health is coming along; I am grateful for that fact.

Well folks, I must put another log on the fire. I need to eat something for supper (it's already 9:20pm!). Jared is out with friends tonight so I'm having some yummy leftovers. I wasn't hungry until now. I could kill for a big slice of pizza! haha

Thank you to everyone for remembering us in your prayers. [You know who you are!] God is faithful. And we are blessed.

Until next time...... keep your stick on the ice. [grin]

(Next post I'm hoping to show a video that will give you an idea of something I've been involved in lately! Hmmmm.... think you can guess?)

You Asked For Updates, You've Got Updates!

Once again I've gotten side-tracked and not been faithful in making some posts to keep you all updated. I don't know what's been going on lately with me! One would think that I would have lots of time with two birds out of the nest.

But nay-nay.... lots going on. When I make a list of everything I've been doing, I imagine that I could have it all completed in just two full days.... so why has it been a whole week? I don't know. Maybe I just have trouble focussing. All I know is that before I know it, I'm crawling back into bed after a full day and have to wonder what filled up my whole day?

I know some of you can relate.

So because I've been running into many folks who keep asking about how the boys are doing, I'll give an update here today.

I have a bit of time today for blogging because Jared had to miss today's hockey game. Jared fills in on one of the Bantam league teams because there were not enough Bantam-aged kids to form teams. Midget players were brought down to help fill in and build up the numbers. (Some Peewee players may have been brought up to play as well; I'm not sure about this, though.)

Yesterday at the highschool's soccer playoff game, a Moira player's knee connected with Jared's front thigh, and down Jared went. He hobbled around for a bit and was able to finish playing, but after the game the leg was pretty sore. He was in a lot of discomfort last night and this morning, so he decided it would be too painful to play hockey. (Sorry about that, Coach Clark!)

That boy gives his all when he plays. It amazes me. In fact, I've told him to STOP playing so hard! He doesn't care if he gets hurt! I will tell you right now that he did NOT inherit that trait from his Momma! He's had more bumps and bruises and cuts and skin ripped off his body. He has sat with his leg up some evenings after a game and we have watched his leg, where the skin has been ripped off, literally ooze!!!! It's not pretty, folks!

The boys on the PECI Panther teams (Junior & Senior) have done an excellent job on the soccer field this season. I am so proud of all the players (even the opposing teams) who go out to play soccer (or any sport!) to support their school. I'm glad we have programs like this. Thank you to the teachers and the coaches (that's you, Dave Mather!) who volunteer their time to these kids. It is greatly appreciated.

So Jared will spend today relaxing to rest his leg, and hopefully he will feel better for the Midget hockey game on Sunday evening. My goodness, I'll go through withdrawal if he can't play! I'll have to just go to the arena anyways and watch his teammates play! haha.

As many of you know, Jake has been working in Georgetown with Jon's friend who is a landscaper. As soon as Jake graduated from high school, he was outta here! He has enjoyed his time up there; but 'tis the season for him to move on. The landscaping work pretty much comes to an end this time of year.

He could've stayed on to do some snow plowing, but since you never know how much snow you're going to get through the Winter, Jake has decided that he would like to truck with his Dad over the Winter. I told him I thought it was a great idea; however, we are of the understanding that he'll be returning to the landscaping business in the Spring. He assures me this will be the case.

Jon and Jake are just now leaving South Dakota with a load of pork and heading to Toronto. They seem to be having a good trip together. Jon says that just having Jake with him feels like he received a blood transfusion. I told Jake to ensure that Dad doesn't sleep in the bunk while Jake unloads the trailer by himself! haha. They just finished updating their Facebook statuses, so I think they're good to go!

Poor Jake must return home this week in order to receive a root canal on one of his teeth as well as a wisdom tooth extraction. He's been in a lot of pain, but the antibiotics have been doing their job and settling the discomfort in his mouth. He was bet and bound, though, that he was going with Dad in the truck! I expect to see them return home some time on Monday.

As Tuesday rolls around, we will breathe another sigh of relief as we anticipate Blake receiving his next dose of Remicade in New Brunswick. Things are all set up for his meds to be administered in Saint John.

His discomfort has been quite minimal, although he did have a bit of pain and fatigue a few days at the end of September or beginning of October. He missed classes one morning and I believe there was another day where he laid down for an afternoon nap and slept through his class. (But he felt better after the nap!)

He was home for Thanksgiving weekend, which we were thrilled about, and he seemed to be feeling relatively well. I was talking to him on the phone the other morning and he asked me to hang on as someone was at his door. I overheard the conversation; and when Blake returned to the phone, he clarified to me that the person was someone from the maintenance department who had very kindly taken the time to make Blake a crockpot of homemade soup! Blake said he'd been talking to her about a month ago when she asked about his health situation, and then she shows up with all this soup for him! What a blessing! Oh how New Brunswick reminds me of Prince Edward County! People are so kind.

So Blake's friend, Aaron, will graciously drive Blake to Saint John early Tuesday morning for his infusion. Blake said that he was supposed to have an exam that day, but his Professor is kindly letting Blake write it the next day. (Thank you, Mr. Professor!!!) Thankfully Aaron has no classes scheduled until later that day, and since Blake's appointment is 8:30am (I think), then there shouldn't be any problems in getting back to the school in plenty of time.

Blake has conveyed to me that his workload is extremely full... overloaded....; however, he says the work comes quite easy to him, he understands it very well. He says, "There's just a LOT of it!". It's apparently very time consuming, along with the hours that he is required to put in at the library. He works 8 hours per week. Now add the fact that he cooks his own meals and must do his own dishes and cleanup and add some laundry in there...... and don't forget about chat time with his sweetheart (Hi Anelyse!), it gets to be a jam-packed schedule. I think he's getting enough sleep; but I also know he's like his Momma and if that sleep time gets broken or cut short, look out! hahaha.

So overall, he's doing well. I so appreciate the school that he's attending. They are a very caring bunch of staff and students and community, and I would recommend Bethany Bible College to anyone!

So, what's up with Jon? Pretty much the same-old-same-old. Jon is still enjoying his life in the trucking industry. He's happy out there doing what he does best. These shorter runs ('shorter' meaning that he's gone 5-7 days as opposed to 10-12 days) seem to be working out really well for him. If he does come home tired, a good night's sleep seems to suffice; whereas he used to come home and sleep and would never truly get caught up.

Jon is thrilled that Jake is travelling with him for the Winter, and I think they'll have a good time. Jon is a hard worker and gives his all.... good attributes to pass on to his children. He has more love for me and our boys in his big toe than many have in their whole heart. He never gives up and he's willing to help anyone who needs it. I am hoping the boys forget our bad habits and traits and are able to focus on these good ones. I am a very fortunate woman to have Jon in my life.

And speaking of me and my life, it certainly has been busy lately. I am very happy that much of my time is spent with or for my boys. I thoroughly enjoy heading to all of Jared's sporting events (even like yesterday when I was bundled up with three sweaters, a winter coat, ear muffs, gloves, boots, a blanket AND a sleeping bag on the soccer field sidelines! It was c-c-c-cooooold!). I am happy to sit in the hockey arena bundled up, sitting on a blanket, and cheering on those kids!

I spent one afternoon this week at a funeral for my friend Linda's husband. Steve became ill early this past Summer and was given only possibly a few short years to live. Unfortunately he lived for only approximately another four months.

Now I know that we're programmed in this world to believe that a funeral is not a good thing. And of course, none of us are happy about someone dying. However, I have attended some amazing funerals where it was a celebration of their life topped off with a parting "see you again one day". If you've never attended a funeral like that, I can assure you that you are truly missing out on an amazing event!

I have attended many funerals of celebration where the service was a testimony of our Lord in their lives. And I left with the assurance that I would one day see them again in eternity. I would leave those funeral services and think "THAT's the kind of service I want when I leave this earth!".

Well, that's exactly what I said when I left the funeral service for Steve. After we heard an "Amen" praise song by two local amazing musical artists, we spent the next 45 minutes or so of the service hearing story after story about Steve. It was non-stop. We heard of things he'd done and said, impacts he'd made on others' lives, his love for family, friends, community, his job..... as well as the love that others had for him! And then the service turned to about ten minutes of God's thirst-quenching presence in our lives. It wasn't "preachy", it wasn't "flowery".... it was to the point. It made an impact. A brilliant presentation of an acapella Amazing Grace was given once again by the two amazing musical ladies, whose voices in that old United Church with the high ceilings and amazing acoustics sounded like that of angels!

Meanwhile, throughout the service, you could just see it was hard for Linda to sit still in her seat. She was itching to jump up and praise Jesus throughout that service. As the casket was wheeled down the aisle to the back of the church, Linda's face beamed with radiance and a smile stretched from ear to ear. She clapped her hands to the song which was blaring through the sound speakers... Life Is A Highway... apparently one of Steve's favourite songs.

Oh, Lord, that I would be able to praise You like that under such circumstances! It's the heart's cry.... Fill me, Lord; mold me; make me; use me....... ANY time, ALL the time...... even at a husband's funeral. What a testimony to the saved and unsaved!

It was truly a celebration. God is alive. Even at a funeral. His presence is everywhere and with us all the time. Even during the dark times when it's hard to maybe sense His presence. He's there, folks. He's always there. Ask Linda. She'll tell you the same thing.

God bless you, Linda, as you grieve the loss of your husband and friend, and know that God shone through you on Wednesday. We love you.

Well, friends, I have more to write about, but I think I'll save it for another post. Jared and I are excited to watch some good ol' Saturday Night Hockey In Canada tonight as we watch the Leafs defeat the Flyers (might want to pray for this to happen because I have SO rubbed this in a friend's face (all in good fun) and don't want to stand with egg on my face or have to eat humble pie! haha).

Trusting that you enjoy some great quality time this weekend with friends and family. We truly do not know how long we have with them. Cherish every moment and opportunity.

Until next time, God bless.

Your Faithfulness

Through the trials we've experienced the last few years, we naturally have many questions as we go through them. We don't like the trials and tribulations because they can bring us pain physically, mentally, emotionally.....

But in going through these difficult times, I have learned what others have said about going through trials... that you come out stronger and closer to God. And when I say stronger, I refer to relying on God's strength. You sure don't feel strong in the middle of your trial, but if you continue to reach out to God and rely on Him to help sustain you through those tough times, He gives you the strength to get through them and you come out stronger in the end.

The battles that we face don't just usually have an affect on one person, but on anyone surrounding the one(s) going through their war. Take Blake, for example. He is the one battling the Crohn's Disease. It's his body that hurts and aches and suffers in a physical sense. It also wreaks havoc on him mentally and emotionally as well. But his battle with Crohn's also affects others: me, his Mom; and Jon, his Dad. It affects his brothers, Jake & Jared. It affects our homelife and the way we try and lead our lives. It affects the grandparents and the aunts and uncles and cousins. It has reached out it's long arms and affected Blake's friends, co-workers, church family, school mates, teachers, community folk.........

The one thing that remains constant through the trials is God's faithfulness. He is always with Blake.... always..... even times when the rest of us can't be there for him. God has His plan for Blake's life, and for our lives. We don't know what tomorrow brings for us. Realistically, we don't know what is going to happen an hour from now.

But God does.

And it is up to us to reach out to Him and fully rely on Him whole-heartedly.... to know that HE.IS.FAITHFUL no matter what tomorrow holds.

On August 22, 2010 Blake took his spindly little body up to the platform at church, grabbed his guitar, and played and sang a song as a testimony that is possibly one of the most beautiful songs I've heard.

I want to share that song with you.

Unfortunately, I do not have a video camera that I could tape Blake singing it. But I did get some photos of him. In the video below, you will hear the voice of Brian Doerksen singing the song "Your Faithfulness". I have posted the words under the video, which I encourage you to follow along while Brian sings. There are no pictures in the video, only sound.

Blake.... you don't think you can play the guitar very well, and you don't think that you can sing very well (and we all disagree with you!); but I will tell you that the Holy Spirit moved in you that morning and blessed many many people. I can't listen to this song without shedding tears as I think about the struggles you have been through. I am thankful that at such a young age you are able to rely on Jesus to help you through your battles. I've said this before, and you've heard it in The Isaacs' lyrics: "there's not a battle that I cannot win, we've already won the war". Keep your eyes fixed on Jesus. We're so proud of you.







[Please scroll to the bottom of the blog page and hit PAUSE on the blog music before starting the video.]










YOUR FAITHFULNESS
Sung by Brian Doerksen


I don't know what this day will bring
Will it be disappointing or filled with longed for things?
I don't know what tomorrow holds
Still I know I can trust Your faithfulness



I don't know if these clouds mean rain
If they do, will they pour down blessing or pain?
I don't know what the future holds
Still I know I can trust Your faithfulness



Certain as the rivers reach the sea
Certain as the sunrise in the east
I can rest in your faithfulness
Surer than a mother's tender love
Surer than the stars still shine above
I can rest in your faithfulness



I don't know how or when I'll die
Will it be a thief, or will I have a chance to say goodbye?
No, I don't know how much time is left
But in the end, I will know your faithfulness



When darkness overwhelms my soul
When thoughts and storms of doubt
Still I trust You are always faithful, always faithful



Certain as the rivers reach the sea
Certain as the sunrise in the east
I can rest in your faithfulness
Surer than a mother's tender love
Surer than the stars still shine above
I can rest in your faithfulness



I don't know what this day will bring
Will it be disappointing, filled with longed for things?
I don't know what tomorrow holds
Still I know I can trust Your faithfulness