Friday, September 3, 2010

Stamp of Approval - Blake Health Update 2010/09/03

It is with great pleasure.....

for me to officially announce......

that Mr. Blake Found......

after approximately 11 months of numerous phone calls, paperwork, prayer, and even the odd time of some hair-pulling........

has received.......

word from his Specialist's secretary......

at 8:55am......

on September 3, 2010......

that funding for his miracle-drug Remicade......



[hold onto your seat....]

We have been notified that, not only will Blake's cost of Remicade be covered but, he is also able to receive his medications when he is out-of-province while attending college in New Brunswick. This means we do not have to cart him back to Ontario every eight weeks for his infusions.

Today, I am one extremely happy Momma.

Just yesterday morning I had a conversation with the Specialist's secretary. She explained to me that I had been misinformed by a few people with regards to Blake's situation. For almost a year now, I seem to get a different story from absolutely everyone I talk to regarding Blake's situation.

I had been told that Blake could, once approved, receive his meds in New Brunswick as long as it was shipped from Ontario to New Brunswick. I spoke to TWO different gentlemen from the Trillium group on TWO different dates who both confirmed it was no problem. I also spoke with a special pharmacy who deals in dispensing Remicade, and they confirmed that it could be shipped in a special refrigerated package and that it must be used within three days.

Our Specialist's secretary said she called Trillium and the pharmacy and was told that it was illegal to ship the meds from Ontario to New Brunswick. She also said she was told that it could not be shipped because it needed to be refrigerated and that it needed to be used within 24 hours.

I don't understand why we are being told completely different stories.

Then the secretary said that Blake would likely have to change his province of residence to New Brunswick and then apply for health coverage there.


Ummmm.... how about NO!

It all sounded very suspicious to me.

Anyways, she called this morning at 8:55am to announce that coverage for this medication will be provided to Blake and that he may receive his infusions while attending college in New Brunswick. They will call him with the date and time of his infusions.

She confirmed we are covered for one year, and at that time she will fill out paperwork to renew the Section 8 coverage and that I am to continue to renew the Trillium coverage.

Yes. I can do that!

Just yesterday, after my phone call with the secretary where we discussed all these contradictory statements given to me, I was frustrated because I had worked so hard on my phone calls and keeping good records of conversations, etc. I had spoken to so many people, including politicians offices who were, by the way, of no help to me. I felt like I had beaten my head against the wall. I had gone out later that day to cut the lawns and I could feel myself getting somewhat angry for all these delays and road blocks.

Then it was like a light bulb came on.

...."praise God anyways".

So I pushed out the negative thoughts and said, "Lord, I'm gonna praise you anyways. YOU know the situation and You have a plan. It's not going well here, but You have a reason why. I'm just gonna praise You anyways".

I continued to cut the lawns, row after row, and then the angry thoughts would creep their way back into my thinking. Then, I would hear, "praise God anyways".... and so I'd starting praising Him all over again. I kept pushing out the angry thoughts, allowing the Holy Spirit to do His work.

"Thank You, Lord. You're watching over us."

"Thank You, Father. Your Word says you'll never leave us nor forsake us."

"Thank You, Lord. You have a plan for this situation. You're in control."

"God, You are good. You are so good."

"I will praise Him, I will praise Him, praise the Lamb for sinners slain. Give Him glory all ye people, for His blood can wash away each stain."

And then, 18 hours later, I get the call.

And just how amazing is THAT!?


I've had my "God moment" for today.


So tomorrow we leave to take my little boy back to New Brunswick. He's gained almost thirty pounds back since June. He's feeling better, looking better, sounding better. Like The Six Million Dollar man, he's stronger... better... faster. Well, OK, I might be stretching it on the "faster" part, but you get my drift.


He has spent the day packing, running last-minute errands, and tonight is relaxing with his best bud Billy. They are downstairs now attacking the XBox360. It gives my heart happiness to hear them laughing and hollering at one another down there.


Please remember us in prayer as we travel all day Saturday. My brother-in-law, Brent, is able to go with me, and I'm very appreciative of that. The van is almost all loaded up and we strike out early morning.


Also remember in your prayers to thank our Lord for His many blessings. What a trial these last few years have been; but we come out victorious because we go through our battles in the name of the Lord.


There's not a battle we cannot win; we've already won the war! Hallelujah!

As a footnote, I'd like to include this video. It was posted on another blog that I follow. The lady with the hat in the video passed away this week to be with Jesus after a battle with cancer. I thought this was a beautiful song, sung in a "round"; it's message seems to fit what I was just writing about. Enjoy.

[Remember to pause my music at the bottom of this page.]

Hearts Uplifted

1 comment:

S said...

You have such an incredible soul.

Last week I was having some medical problems and had to go into the hospital Friday for an upper endoscopy (camera down the throat) and one of my release forms for the GI specialist was all about remicade and that there would be no billing for anyone receiving it and you pay up front for it and sell your soul or your first born child. haha.
It made me think of you guys.
I'm happy for your news.
God is good. All the time.