Blake Health Update 2010/08/31

Sometimes.....

you feel.....

like your balloon.....

gets deflated.....

That's kind of how we're feeling at the moment.

Blake's Remicade will not be administered today. We are looking at a high possibility for tomorrow, Wednesday.

Our nurse, Amy, (who is one of my favourite nurses here. She is the nurse who gave Blake his very first Remicade dose last Fall on Connell 6.), came in and said that because of the high cost of the medication, the Pharmacist was required to sign the order. Because he did not sign it until after 4pm yesterday, the order did not get processed until today. Therefore, the meds will not arrive until tomorrow..... hopefully.

We're naturally disappointed, especially because of the fact that the Doctor has authorized our discharge as soon as the meds are infused. Blake was supposed to play his last show with Grampa's Goodtime Gang tonight before he heads off to school in New Brunswick this weekend.

It's disappointing that he doesn't get his medication today; and it's disappointing that he doesn't get his last show with "the boys".....

However.....

We are still grateful for this bed and the care that we have received here. We are still grateful that the doctors have admitted him in order to receive this medication at no financial cost to us. We are still grateful that Blake is not in a lot of pain. We are still grateful that God's plans always succeed. We are under His care and mindful that He is still in control.

Blake is feeling better now than first thing this morning. He woke up to a really bad migraine that was affecting him in behind his eyes. After some Tylenol #3's and some Gravol and a little nap, he is much better. I believe it has likely resulted from the barometric pressure, as opposed to the Crohn's Disease. Blake does well to take this Disease in stride. He shouldn't have to deal with this, but it's now a part of his life and he'll have to learn to adjust to it. As a mother, we want to just take on the pain and issues ourselves; but I'm confident that the Lord will use this hurdle to bring glory to Himself through Blake. Blake has already come to terms with so much in his conversations with the Lord since his diagnosis last Fall.

We ALL have so much to learn, don't we? And it will continue to be so until the day we meet our Lord face to face.

Until then, I hope you have a big bunch of inflated helium balloons in your life! (Inhaling some of that helium can be fun, too! [she said in a high-pitched Mickey Mouse tone] haha)

In the meantime, you know where WE will be!!!!

Have a great day, folks.