Wednesday, October 28, 2009

Remicade Dose #2 - It's A "Go"

Received word today that Dose #2 of Blake's Remicade is a "go" for Thursday afternoon in Kingston.

Blake and I will travel down in the late morning to ensure we arrive on time, and not the usual oopsie-I'm-sorry-we-have-arrived-late-once-again/this-is-becoming-a-habit/"Fraser-fashionably" late.

I think maybe there's some sort of ladies cat fight happening amongst one of the specialist's secretaries and a lady who went to bat for us in getting a compassion dose. Sometimes certain folks like to play the hero and have to be "in the know", and I think that might be what I witnessed with these two ladies (and my apologies if I'm wrong); however, I just want my kid to get his medicine as quickly and as cheaply as possible, no matter WHO arranges WHAT.

Another lady I spoke with today, who had called to confirm the appointment for tomorrow, chuckled away at me as I referred to these two women who seem to be in a cat fight. I laughed and told her, "I just don't want to be in the MIDDLE of it (the cat fight)!" She said, "Well, it's good that you can laugh about it!"

I wanted to tell her that humour is one of the few things that actually helps me face difficult situations. I mean, if you can't laugh about the cards you've been dealt, then you shouldn't be in the game! Not that we have a choice of "being in the game"... after all, the game IS LIFE, and we're all here looking at our cards deciding how we're gonna handle playing them..... might as well laugh about it and enjoy the ride!

Now before y'all think I'm just Ms-Happy-Go-Lucky-and-I-take-everything-with-a-grain-of-salt, let me tell ya that I am NOT such a person and I DO sometimes get cranky and p***y (sorry)..... I mean, just ask Jon! I blew my stack today so wild and crazy-like, I'm surprised the folks in the north end of The County didn't stop, stretch an ear, and say, "Hey, did you HEAR that??? What in tarnations.........?"

Oh well, we all need a little venting maybe. Too bad it was Jon on the other end, but he deserved it anyways....... BUT I'M NOT GONNA GET INTO IT ON THE BLOG! However, when HE gets home...............................

Anyways, I really do want to talk to the social worker in Kingston and have her tell me exactly WHO I am supposed to be listening to and taking direction from. I don't want to mess anything up with the kind assistance of those responsible for the compassion dose, nor do I want to get on the wrong side of specialist's secretary. Both are key players in our current game of LIFE and I want to keep
happy for the sake of my son's health.

There was a great article that came out today in The Wellington Times. The reporter had come out to the fundraiser on Sunday (Thank you, Kathleen!) and wrote up an article with some pictures. I tried to find the link to the article online, but can't find it. It's in today's edition (October 28th) but the online version doesn't seem to show it. If I find it, I'll post it. If not, you local folks can pick up a copy in one of those little blue stands that are posted all over The County.

I just got off the phone with a gentleman named Keith who is planning a fundraiser for Blake. It's a country/square dance to be held in Allisonville (north end of The County). Details are not in stone yet, but I'll let you know when the i's are dotted and the t's are crossed.

And if you're hungry on Saturday, don't forget that the West Lake Church of Christ is sponsoring a feast of pancakes to be held at Fosterholm Farms Sap Shanty. We so appreciate this congregation's outpouring of compassion, as well as the kindness of the Foster Family to donate the use of their sap shanty. Thank you folks!

I will try and post tomorrow night or Friday to let you all know how Blake does with his treatment. I am praying all goes well and that his body continues to accept this medication so that his "guts" can heal. Please pray for his health to stay strong. With all this H1N1 going around, we must be extremely careful that he does not pick up any bugs. (I think we ALL need to be careful, but you understand what I mean, right? Any signs of infections means Blake will have to wait for a Remicade dose, and we certainly don't want to wait any longer than we need to.)

Take care everyone.

Oh yah, one final note, if you don't mind...... please Pray for Stellan. I have mentioned him before. He's a little boy who has suffered with a heart condition since before birth. I follow his Mom's blog... they're in the States. Stellan was rushed to the hospital yet once again with SVT. He's a sweetheart and needs lots of prayer. You can find MckMama by clicking here on My Charming Kids.

This is a picture of Stellan today. Bless his heart.

Stellan - October 28, 2009

Please pray for him.

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